Monday, May 3, 2010

Our little princess!!!

I have not looked forward to posting this. It isn't the thing you want to blog about, but it is very much the only thing on my mind lately. I took Bella into the doctor on Wednesday for her well baby check up. They were doing the regular measurements, and noticed that her head was too big for her age. She also is behind in her development. She is almost 7 months old and isn't sitting up and not reaching out and grabbing things. This has been worrying me for awhile, but I kept trying to tell myself that it is just different kids going at different speeds. Well, the doctor came back in and said he wanted to ultrasound her head to make sure everything was okay. That made me a little nervous, but I hoped that we would just find out she had a big head. Anyway, the results came back and our sweet little Bella has hydrocephalus, which is too much water on the brain, and they also couldn't find her septum pellucidum, which is the membrane between her 3rd and 4th ventricles. Well, we were pretty devastated to hear that anything was wrong with our baby. We are not sure what to expect, but I think they are going to want to do a shunt for the hydrocephalus, and we still don't know what to think about the absence of the septum pellucidum. She has an appointment scheduled for Friday at 12:30 in Salt Lake at the Primary Children's hospital. They are going to do an MRI. We are praying that everything is going to be okay for Bella. She is such a cute little stinker, and it breaks my heart to think of anything being wrong with her. She is a queen in our home and will always be. We love her forever!!!


Sotutus said...

Trina, I was so sad to hear about sweet Bella. I've been thinking about you all weekend and thought about calling, but I didn't want to upset you more. Please just know that you are all in our prayers. If there is anything we can do for you, please let us know. We will continue to pray for little Bella!

Tonya said...

We are so sorry to hear about little Bella; she is too cute! You are in our thoughts and prayers!

Jenny said...

Your family sure has been through a lot lately. I am praying for darling Bella! Love ya!

Tiffani Tarbet said...

I love that little princess too! She is a sweetheart, and I am praying that things will turn out okay. We love you guys!

Mosers said...

All you are going through is not exactly up my ally, however; I do understand having a child with "a difference". My baby is getting hearing aids like his brother and his development has almost completely stopped like his brothers did at this age. I know from the experience of Jordan dying (suddenly) that you have a full plate. If you want info for financial help (katie beckett), or just someone to talk to.. you can talk to me.. here's my e-mail.
From experience, PCMC is fabulous to work with. They make the experience so fun for the kids and have a great facility. We had an MRI done there for Landen too. The best advise I can give you is that you are a candle in the wind.. remember what you are burning for and that is "all" that matters.

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